1. What is a curated data lake and where does the Digital Hub get its information?
A curated data lake is a collection of information that has been gathered, organised, and quality-checked from trusted sources. Unlike a random collection of files or internet pages, a curated data lake ensures that the data is relevant, reliable, and up to date.
The Digital Hub draws its information from this curated data lake — which may include scientific publications, project reports, validated datasets, and institutional resources — rather than from the open internet. This means that the information you see has already been selected and structured for accuracy and relevance.
2. What is meant by Digital Transformation for personalised medicine?
Digital Transformation refers to using modern digital tools — such as artificial intelligence, advanced data management, and cloud platforms — to improve the way healthcare and research are carried out.
In personalised medicine, this means making it easier to access, combine, and analyse different types of health and research data. The goal is to help researchers and clinicians provide treatments that are tailored to the individual, based on evidence from multiple sources. The Hub is one example of this transformation: it allows faster and more intuitive discovery of knowledge across different domains.
3. Will my input information/queries be stored and what are they used for? Are my queries used to train the model?
Your queries are processed so the Hub can return the right information. They may be logged securely to improve system performance, monitor usage, or resolve technical issues — but they are not shared outside the system.
Importantly, your queries are not used to train the underlying AI model (such as OpenAI’s model). The model itself has already been trained before being integrated into the Hub. Logged queries may be analysed only to improve the Hub’s own search and retrieval features, not to alter the AI model.
4. Can I create a user profile to save my queries?
Not yet. A user profile allows you to save searches, mark useful results, and return to past queries without re-entering them. For now, you can only use the Hub without a profile, but we know that creating one makes it easier to track your work over time. Stay tuned!
5. Is the Digital Hub/data lake connected to the internet and giving me real-time information?
No. The Digital Hub is not a live internet search engine per se. It works primarily with its curated data lake, which is a trusted collection of sources that has been assembled and validated.
However, to enrich the results, the Hub also uses trusted web resources containing peer-reviewed scientific literature (for example, PubMed and similar databases). This ensures that the information you receive is not only reliable and quality-checked but also supplemented with up-to-date insights from authoritative scientific sources.
Updates to the data lake and external resources are incorporated in a controlled way, so you can trust both the accuracy and the relevance of the results.
6. Who can access the Digital Hub?
The Digital Hub is open to everyone. You do not need to register or create a user profile to use it. The goal is to make the curated data lake and connected resources as widely accessible as possible, supporting both the research community and the general public. While other tiers might be introduced down the line, the basic functionality of the Hub remains accessible and open.
7. How often is the curated data lake updated?
The curated data lake is updated on a regular basis to include new and relevant content. Updates follow a structured process based on criteria developed by our network of experts, ensuring that only information from validated and trusted sources is added.
In addition, the Hub supplements this data with content from trusted web resources containing peer-reviewed scientific literature (such as PubMed), so users also benefit from the latest published research.
8. What are the limits of the Hub?
The Hub is designed as a knowledge discovery and navigation tool, not as a decision-making system. This means:
It does not provide medical advice or substitute for consultation with qualified professionals.
It does not replace official regulatory documents or clinical guidelines.
It should be seen as a support tool for information discovery and research orientation, not as an authoritative final source on its own.
Users should always interpret results critically and, where necessary, verify them against official or primary sources.